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A Commissioner for Disabled People (Abridged Copy)
A Commissioner for Disabled People (Abridged Copy) Advocacy Resources, tools and authority Investigation and Clarification Publicity, pressure and lobbying Support and empathy Mediation and guidance Advice and access Precedents, progress and consistency Nathan Lee Davies – 1/11/2024
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Mini Blog – Abridged Copy
Welcome to my “mini-blog” (Abridged version) I am a full time wheelchair user and live with a progressive, genetic disease of the nervous system known as Friedreich’s Ataxia (FA). This debilitating disease only affects one in 50,000 people. The median age of death of a person with FA is 35, so at age 47 I
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Commissioner for Disabled People
Here is my proposal for a Commissioner for Disabled People. Advocacy Resources, tools and authority Clarification and investigation Publicity, pressure and lobbying Support and empathy Mediation and guidance Advice and access Precedents, progress and consistency a) Persons with disabilities have the opportunity to choose their place of residence and where and with whom they live
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Mini Blog to Comrades
I have written a series of mini blogs to a number of organisations of which I am a member. These blogs open lines of communication with various groups as I struggle to attend their meetings. I have therefore had to be creative and hopefully these mini blogs will be effective enough to get my message
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Appeal and Complaint Submitted
I apologise for being rather distracted lately, but I have a lot on my plate. I should be enjoying what remains of my life and celebrating the fact that I have lived over and above the median age of death for someone with Friedreich’s Ataxia, which is 35 years of age. I am currently 47-years-old.
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On the Road
Just making the first of many progress reports about my 6773km cycle from my home address in Wrexham to International Drive in Orlando, Florida. I have been keeping a record of the distance I have travelled since I started using my Thera Trainer back in March. I have been developing the distance that I do
Update Pending
I haven’t forgotten the kindness of strangers – and people that I know of course – who donated to my GoFundMe page and enabled my trip to Florida to go ahead at the end of May. My eyes were opened to certain difficulties that still exist for disabled people travelling away from home. I want
Disabled people face battle for health and social care support
This is a article from the South Wales Argus about a video conference that I took part in last week, along with my good friend and comrade Chris Hall. It was a important consultation with the Senedd Health and Social Care Committee about the future of independent living and how it will be funded. The
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Cheap tarnished glitter
I wrote the following email after a distressing meeting with members of Wrexham CBC on Tuesday the 12th of March. It was nothing short of bullying by an unscrupulous and heartless Local Authority. I will let you read the email below and come to your own conclusions. I am supposed to be looking forward to
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