I apologise for being rather distracted lately, but I have a lot on my plate. I should be enjoying what remains of my life and celebrating the fact that I have lived over and above the median age of death for someone with Friedreich’s Ataxia, which is 35 years of age. I am currently 47-years-old. […]
Appeal and Complaint Submitted Read More »
Just making the first of many progress reports about my 6773km cycle from my home address in Wrexham to International Drive in Orlando, Florida. I have been keeping a record of the distance I have travelled since I started using my Thera Trainer back in March. I have been developing the distance that I do
I haven’t forgotten the kindness of strangers – and people that I know of course – who donated to my GoFundMe page and enabled my trip to Florida to go ahead at the end of May. My eyes were opened to certain difficulties that still exist for disabled people travelling away from home. I want
This is a article from the South Wales Argus about a video conference that I took part in last week, along with my good friend and comrade Chris Hall. It was a important consultation with the Senedd Health and Social Care Committee about the future of independent living and how it will be funded. The
Disabled people face battle for health and social care support Read More »
I wrote the following email after a distressing meeting with members of Wrexham CBC on Tuesday the 12th of March. It was nothing short of bullying by an unscrupulous and heartless Local Authority. I will let you read the email below and come to your own conclusions. I am supposed to be looking forward to
Cheap tarnished glitter Read More »
The following blog has been written and published by John Pring on the excellent Disability News Service website. The amount of support that I have received is overwhelming and I really appreciate all the solidarity shown. I have just been contacted by John Pring who said that the BBC are now interested in covering the
Council stops activist using care funding for first holiday in 20 years Read More »
I am writing the following blog in a very careful manner. I just want to relay the facts and the injustice, as I see it, being served to me by the Adult Social Care department at Wrexham County Borough Council (WCBC). In 2022, I expressed an interest in taking a short break to Florida. This
I am sharing the post below that can be found on the Disabled People Against Cuts (DPAC) website. The social care staffing crisis is something that affects me every day and limits me as I try to achieve my ambitions and goals. Please read the article below and spend 5 minutes emailing your MP as
Social Care Staffing Crisis – latest developments Read More »
The following article was taken from the Luke Clements site and was written by Ann James. *** February 18, 2020 The Deputy Minister’s update statement on the Welsh Independent Living Grant[1] (WILG) is particularly welcome because it acknowledges the risk to the independence,choice and control of disabled people in Wales unless the Welsh Government enables people in
Direct Payments and NHS Continuing Health Care #SaveWILG Read More »
The following is an article written by John Pring on his excellent Disability News Service website. This can be accessed by clicking here. I have been put in a difficult position following the publication of the Welsh Government’s new framework on independent living – Action On Disability – The Right to Independent Living. I have
