I received the following email this morning, concerning the International Welsh Poetry Competition. This is something that I wrote about at the beginning of the year, when I was intending on entering a poem of my own. There is now no way I will meet the deadline for entries, but even if I was in […]
The following YouTube video is probably not the best to watch when you are living with Friedreich’s Ataxia at the age of 42. The median age of death for someone with this cruel progressive, genetic disease is 35. Nevertheless, Dr Antonis Pantazis expertly provides answers to questions that will concern and enlighten those who suffer
Q&A with Dr Antonis Pantazis Read More »
The following article was taken from the Disabled People Against Cuts (DPAC) website and can be read in full by clicking here. The Reclaiming Our Futures Alliance, a network of disabled people and our organisations in England, is asking for support for a bold new vision for independent living* for the future. (* The phrase
A National Independent Living Support Service #Right2IL Read More »
I received the following email from Carmarthenshire-based Tracey Howells, the daughter of a WILG recipient. The following should provide hope and support for anyone wanting to oppose decisions made by local authorities. Those of you who have been following this blog closely, will not be surprised to read about yet more incompetence from local authorities. The good
Open Letter from Daughter of WILG Recipient #SaveWILG Read More »
All WILG recipients – and their families – should be alerted to the following letter, which explains what happens next in the WILG transition process. This is particularly important for those of us who are unhappy with the level of support we’re receiving from local authorities. I am happy that we have made further progress,
Many thanks to Rosemary Burslem for drawing my attention to the following guide to Direct Payments, which has been published by Social Care Wales. It can be read in full by clicking here. This is a very illuminating guide, which clearly shows that Direct Payments can be used for other things as well as support
Direct Payments Guide Issued by Social Care Wales Read More »
This is most concerning and deeply troubling. My first thought was to boycott Facebook and close my personal pages. On further thought I have decided that it is more productive for me to continue my activism on disability rights through Facebook and hope that I can change perceptions of disability.
What my #SaveWILG campaign is in need of right now is an updated theme tune. At the moment, WILG recipients find themselves in a state of limbo without any clear direction on the way forward. Local authorities are of little support and the onus seems to be upon the Welsh Government to push through their
“Gimme Shelter” – #SaveWILG Version Read More »
I was recently sad to learn of the tragic passing of Neil Dobie who was a valued and committed member of the Wrexham AFC Disabled Supporters Association. It is only because of the DSA that I continue to attend the Racecourse on a regular basis and Neil was a committee member who always had time
Neil Dobie RIP: Tribute Planned Read More »
