[The following blog is written with grateful thanks in memory of Tony – surname unknown – a remarkable individual who lived with FA until the age of 80] For far too long I have been fixated on the fact that the median age of death for people with Friedreich’s Ataxia is just 35 years of […]
It is my birthday today (February 12th). Somehow I have reached 45 years of age, which is significant for many reasons. The majority of my readers will realise that I live with a progressive, genetic disease of the nervous system known as Friedreich’s Ataxia. The median age of death for those of us with this
I received the following email from Reclaiming Our Futures Alliance (ROFA), regarding the crisis in social care. This an opportunity for all those affected by the current situation, to have their say. We cannot let this chance pass us by, and all need to make our voices heard. Please read the message below, join in
Urgent – Social Care Campaign – Request for case studies Read More »
I have finally completed a Memory Match for every season that Wrexham AFC played in the Football League between 1921 and 2008. I first started writing these columns in 2015 for the Wrexham AFC matchday programme. After submitting these contributions to the programme for two seasons I became disillusioned with the direction that the club
Memory Match – 09-03-74 Read More »
As I try to get the most out of 2022 I am increasingly in need of some technical support as the modern world threatens to run away from me. I just not have the expertise to fully immerse myself in the constantly changing world of tomorrow. When I tell you what support I need, you
Technical Support Needed Read More »
Those regular readers of my blog will realise that loneliness is a problem that has dogged me for years. I am sure that I have mentioned it in Every Silver Lining has a Cloud and Dancing on Thin Ice. Indeed, my last blog my entry, Reaching into the Darkness, discusses my horrendous Xmas 2021 and
In your dreams does your lover have my face? Read More »
I hope everyone is having a positive start to 2022. I have started the year as I mean to go on and am surprisingly positive about the months and years ahead. Over the festive period, I happened to catch the following words of wisdom from Dr Anand Patel who was speaking to Bob Mortimer on
Reaching into the Darkness… Read More »
This is the last-but-one Memory Match that I will be writing before having written a match report for every season that Wrexham AFC enjoyed in the Football League, between 1921 and 2008. I will then be in a position to publish the book that I have been working on since 2015. Wouldn’t it be great,
Memory Match – 18-08-71 Read More »
For info – in case anyone missed this: https://gov.wales/social-care-staff-earn-real-living-wage This is excellent news to start the new year, and hopefully it will lead to an improvement in my staffing situation. The Welsh Government and Julie Morgan should be applauded for taking this bold step. I would also like to point out that I already pay
Social Support staff to earn the Real Living Wage Read More »
The following article has been taken from the Disabled People Against Cuts website. The original article can be found at Think Local Act Personal. It has been a tough Xmas period, and fundamental changes need to take place to my support set-up, to ensure that I am not left in the same predicament at this
Survey on Personal Assistant Recruitment and Retention Read More »
