I am happy to announce that my fundraising page is now open at JustGiving. I will be taking on the virtual challenge of cycling the length of the United Kingdom from John O’Groats to Land’s End to raise funds for a charity that is close to my heart – Ataxia UK. To visit my JustGiving […]
JustGiving Page Launched Read More »
I apologise for being rather distracted lately, but I have a lot on my plate. I should be enjoying what remains of my life and celebrating the fact that I have lived over and above the median age of death for someone with Friedreich’s Ataxia, which is 35 years of age. I am currently 47-years-old.
Appeal and Complaint Submitted Read More »
This is a article from the South Wales Argus about a video conference that I took part in last week, along with my good friend and comrade Chris Hall. It was a important consultation with the Senedd Health and Social Care Committee about the future of independent living and how it will be funded. The
Disabled people face battle for health and social care support Read More »
PA POSITION AVAILABLE – IMMEDIATE START REQUIRED I am a 47-year-old man living in the Stansty area of Wrexham. I am a wheelchair user and live with Friedreich’s Ataxia. Subsequently, I require 24/7 care and require administrative support to remain independent. I am an author and disabled activist with a good sense of humour. I
PA Position Available Read More »
I am writing the following blog in a very careful manner. I just want to relay the facts and the injustice, as I see it, being served to me by the Adult Social Care department at Wrexham County Borough Council (WCBC). In 2022, I expressed an interest in taking a short break to Florida. This
ADMIN POSITION AVAILABLE – IMMEDIATE START REQUIRED I am a 47-year-old man living in the Stansty area of Wrexham. I am a wheelchair user and live with Friedreich’s Ataxia. Subsequently, I require 24/7 care and require administrative support to remain independent. I am an author and disabled activist with a good sense of humour. I
PA Position Available Read More »
I love you deeply A forbidden union It’s complicated It has been a chaotic first week of selling Dirty Old Town. It has been good that I have been able to educate younger fans who are just beginning their Wrexham AFC journey, while also bringing back memories to the older generation. I have been sincerely
[The following blog is written with grateful thanks in memory of Tony – surname unknown – a remarkable individual who lived with FA until the age of 80] For far too long I have been fixated on the fact that the median age of death for people with Friedreich’s Ataxia is just 35 years of
It is my birthday today (February 12th). Somehow I have reached 45 years of age, which is significant for many reasons. The majority of my readers will realise that I live with a progressive, genetic disease of the nervous system known as Friedreich’s Ataxia. The median age of death for those of us with this
As I try to get the most out of 2022 I am increasingly in need of some technical support as the modern world threatens to run away from me. I just not have the expertise to fully immerse myself in the constantly changing world of tomorrow. When I tell you what support I need, you
Technical Support Needed Read More »
