I am up to my neck in negotiations with my local authority over emergency payments for my depleted Direct Payments account. It has taken a beating over the past six months, as I have been using it to fund the 24/7 support that I so desperately need. I had saved quite a sum to be used in such a situation – it was always going to happen, due to the fact that I live with a progressive disability and had not been fully reassessed since 2010.
I am pleased to report that, having met with the Head of Adult Social Care, WCBC have agreed to make the relevant payments to ensure that I can continue to receive the support I need, at least until the end of my forthcoming WILG reassessment.
There is one thing that I would like to make clear to WCBC and all local authorities. One of the meetings I recently had with WCBC, through up the question of where the additional funds that I am now in desperate need of, would come from? I was shocked and disappointed that WCBC and a number of other local authorities, do not seem to grasp the fact that the #SaveWILG campaign that I led, resulted in the Welsh Government agreeing to fund any extra costs incurred. This was clearly outlined in a written statement on the future of WILG payments, made by the Deputy Minister for Health and Social Services, Julie Morgan on the 18th of July:
I would remind Members that the cost of these independent care assessments, and any additional support for people that might be identified from them, will be met by the Welsh Government. This is so that there can be no question of changes being made to people’s care and support as a cost cutting measure. The under-pinning principle of my approach is to ensure that outcomes reached are consistent with supporting people’s agreed well-being outcomes.
It is important that all local authorities realise that Ministers have agreed to fund any increased care costs that may arise from the outcome of an independent assessment.
Even though the #SaveWILG campaign has been extremely critical of local authorities in Wales over the past four years when dealing with WILG recipients, we have actually assisted cash-strapped councils by reducing the amount they are expected to pay to support disabled people with high support needs across Wales.
WILG recipients and their supporters need to remember this fact, and hammer it home when confronted by adult social care professionals who do not keep up with the news, or realise just what an impact the #SaveWILG campaign has had. The Welsh Government has actually done something pretty special and deserve all the credit in the world. They have listened to our fears, read the evidence we collected and acted decisively. Sadly, there is little room for any positive news in the media at the moment, as we are all obsessed with the actions of a Conservative Muppet and the mess he is making of the BREXIT debacle.
All we need to do now, is remind all local authorities of the changes that have been introduced…